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My name is Sarah Malburg and I suffer from Stargardts disease, a retinal degenerative disease- "juvenile" macular degeneration to be specific. This disease affects your central vision, as it affects mainly your cones in your macula (center) of your retina. It also can cause color blindness (I struggle with various colored ink) and light sensitivity. Basically in not so many words, it is like the fine-tuning of a camera lens. The disease gives a "malloted" appearance to your retina which distorts vision - like you see out of focus and some spots are black in the middle. 
 
Diagnosed in 2001, I have been legally blind for 16  years, without the ability to drive. I have two young boys, ages 8 and 5 and as this is a genetic disease, they are automatically carriers of the gene. They are at risk of developing this disease themselves, and so it is very important to me to advocate for finding a cure and/or preventions for Stargardts. 
 
In 2012, my retinal specialist brought to my attention the WNY Visionwalk. The WNY Visionwalk is a 5K event that raises money and awareness around WNY of the Foundation Fighting Blindness, a nonprofit national organization that drives research for preventions and treatments of rare retinal degenerative diseases such as Stargardts, Usher Syndrome, Macular degeneration, and retinitis pigmentosa. This event was held at Delaware Park and is a free, family-friendly walk, with food, drinks, kids' activities, etc. My family and friends then helped me to form a team "What’s Insight for Sarah?" and we went on to raise $2200 our first year! 
 
In 2013, I was then approached by the FFB to be the WNY Visionwalk Chairperson and gladly accepted and was honored to fill this role. Our team went on to raise over $8000 that  year! In 2014, as my 3rd year chairing the event, my team raised over $13000! In the past five years,   we have rasied over $30,000 as a team for the FFB!
 
Over the past 5 years, WNY as a community has raised over $250,000 for the FFB and retinal research! Truly amazing and so proud! 
 
I was asked again this year to co-chair the event and am greatly looking forward to meeting or surpassing our goal! Our goal for the walk this year as a whole is $50,000 and our team, What's Insight for Sarah?" has a goal of $1000!
I am very excited about our accomplishments and very grateful to all of my family and friends and walk committee for their support! 
 
If interested in making a donation to our team, please go to 
 
http://www.fightblindness.org/goto/teamsarah

If interested in joining my team for walk day, click on JOIN THIS TEAM at the website above. 
 
Any help is greatly appreciated!
 
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Visionwalk 2012
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My Family
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Visionwalk 2013
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Miss New York and I-Visionwalk 2013
Visionwalk 2015
Visionwalk 2015