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March 31, 2014

Life's Little Challenges

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There are good days and bad days with Stargardts. Sometimes I can see the tiniest bug on the wall and Andy says to me, "How in the world did you see that?" Some days, I have to read or watch TV with the lights very dim, as to avoid too much glare and there are days where going outside in the sun is actually painful for me because of my sensitivity to light. There are days where my eyes feel strained, bruised and scratchy from straining or trying to focus more. Some days, I can see clearer than o...

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March 31, 2014

Home Sweet Home

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September 2009
 
We finally purchased a house in West Seneca! It needed some upgrading so we painted, installed new carpets and fixed up a few things. Perfect fit for us - 3 bedrooms, an office, a partially finished basement, attached garage and a fenced yard with built-in pool!
 At this point, I was still working at Bright Hub and now was a contributing editor and was making a little money on the side. It gave me an outlet to express myself plus kept me in the educational loop so to spea...

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March 12, 2014

Back in Buffalo

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Once we moved back on got settled in, I had taken a few more grad classes online through UB to get my advanced certificated in Educational Technology 
I was so thrilled I found a complete Masters Degree program online and one that would qualify for my permanent certification. I had to get an extension due to my situation and vision complications, so in order to submit proof, I had to go see the retinal specialist again and go for another ERG. Again, the same results and she told me that I shou...

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March 11, 2014

Sightless in Seattle

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August 2006
 
Andy (my husband) and I relocated to Seattle for his job. At that point, I was teaching in Niagara Falls and took a sabbatical/leave of absence for relocation. In the meantime, I was searching for a music job teaching instrumental lessons, something small that would help me transition while I attempted to finish my Masters and become Washington certified. 
 
I spoke with a Music lesson studio and we communicated through email for awhile. Then back in May, when we fl...

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March 11, 2014

The Commission of the Blind NYS

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fter my diagnosis, the doctor then mentioned to register for the NYS Commission of the Blind and Low Vision Services. I did just that. I went to the Olmstead Center for Sight and the WNY Low Vision Center and they gave me some devices to help me see up close for reading such as magnifiers, special light bulbs, etc. The one thing that stumped them, is the mid-distance view for reading music. What a challenge, and to this day it is still a challenge. Sure there are magnifiers for music stands and...

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March 11, 2014

Did You Drive Here Today?

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April 2001
 
I was having constant headaches and really becoming so sensitive to light, especially the sun. One morning I was driving to school in the rain (it was still dark out) and hit the curb (median) and blew a tire. The glare was just killing me. I never did go for that check up to see if I needed a new script, and you know driving was beginning to make me nervous. A few months go by...
 
June 2001
 
The school I was teaching Music at just laid me off - they had budget cuts of...

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March 11, 2014

My Senior Recital

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May 2000
 
The lights flickered, I kept blinking. "Why can't my eyes focus?" I kept thinking to myself. I had to keep adjusting the music stand, keeping adjusting myself, looking out into the audience and I continued to squint. I had to have the lights dimmed and they were still so bright. 
 
I got through it. Three movements and three musical selections later, I was finished. The performance complete and relief swept over me. Was it a perfect performance? Not exactly, but I could not br...

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