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March 11, 2014

The Commission of the Blind NYS

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fter my diagnosis, the doctor then mentioned to register for the NYS Commission of the Blind and Low Vision Services. I did just that. I went to the Olmstead Center for Sight and the WNY Low Vision Center and they gave me some devices to help me see up close for reading such as magnifiers, special light bulbs, etc. The one thing that stumped them, is the mid-distance view for reading music. What a challenge, and to this day it is still a challenge. Sure there are magnifiers for music stands and large print music, but it becomes distorted often and if you hold it, well then you can't move freely to express yourself. Very frustrating! 
 
The state then assigned me a social/case worker and they sent all kinds of people to my house - rehab people, vocational people, home living people…it sort of felt like I was 80 years old and not able to take care of myself. I wanted to scream my head off! 
 
After a couple of years of follow ups, I just couldn't take it anymore and they closed my case.  I just wanted to bury my head in the sand and let everything stay status quo...just leave it be.  Thinking about using assistive devices made me very emotional and just frustrated me further. 
 
 

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